isn't it funny....

It's kind of funny how things work out. The last post I made had some repercussions. Let me explain. When I said the things I said in my last post, it hurt my husband's feelings and he was upset with me. It honestly was not my intention to try and make him feel bad. I do not think he is a bad guy, and he is certainly not a bad father. I was only trying to share my frustrations. I feel that the things that I go through, that we go through as parents of a special needs child need to be on here so that others know they are not alone in the way they feel. Some of the things I share might be hard to read, hard to understand, and for some, hard to hear, but I will keep posting the things that I feel might make a difference in another parent's life.

Now for the funny part....and I do not mean funny ha-ha, I mean funny as in ironic. Every morning before he leaves for work, Mike watches Mike & Mike on ESPN. When he leaves for work, he listens to the rest of it in his truck. I was at home when he left this morning, and instead of switching the television over the HGTV as I usually do, I left it on ESPN as I did a few chores. After a little while, something caught my attention. It was Jim Kelly talking about his wife's new book, Without A Word. He and his wife had a son named Hunter, who was diagnosed with Globoid-Cell Leukodystrophy, or Krabbe disease. It is a fatal degenerative disorder. He spoke briefly about how having a special needs child can affect a marriage, and about how communication is important. You can listen to what he had to say here:  Jim Kelly on Mike & Mike ESPN   (the part I am talking about is about 8 minutes into it) I cried as I listened....what he said really hit home with me....it touched on what I have been feeling, and with what I was trying to express in my last post.  Within minutes, Mike sent me a text. A simple text that said he still loved me, but it spoke volumes.He had been listening, and had actually heard what Jim Kelly was saying. The lines of communications were opened and walls came down. It does not always take a long, drawn out conversation to make a point. A very wise friend of mine asked me, after reading my last post if I had ever directly asked Mike for help. I wanted to say that I should not have to ask, but honestly, I got the point.....How can I expect him to help me when I am not expressing to him exactly what I need help with? My friend also pointed out that men and women are different, and as such, think and  interpret things differently. Maybe my not asking for help meant to him that I did not need help. It is logical and makes more sense to me now. Communication is a two way street.

Mike brought  home a copy of Jill Kelly's book for me. It is a great book, but very hard for me to read. I look forward to finishing it.