Sorry that I have not posted in a while.....things have been pretty much the same. Matthew has had good days and bad days. The good days, full of giggles and silliness are fun, but the bad days....the ones with the crying and pinching, hitting and biting, are pretty tough to deal with. Because of this, we hardly go anywhere anymore.
Today however, was different. Today we ventured out despite the warnings of ice and snow. We traveled to Bryant to see our grandson, Xander, be dedicated at church. It was quite an adventure! We got up and got ready, and let me tell you, I was worried. All of the weather forecasts promised bad weather, and Matthew started the day off upset. I had to medicate him and just prayed for the best. To make things worse, Cody and Dedra had to head back to Nashville today, so we were already missing them and worried they might get into bad weather as well. We got to the church in Bryant just fine, but had already received word that sleet was accumulating at home. We weren't able to hang around and spend time with Alyson and Xander, instead we had to get on the road as soon as his dedication was over. I have to say, in spite of the weather and how the day started, it ended up great. Matthew held Xander for the first time, and they seemed to like each other. lol And although what should have taken us just under 2 hours to get home took just over 3 instead, we made it home safe. In fact, everyone did. Alyson and Xander are safe at their place, and Cody and Dedra are safe at their place in Nashville. Matthew even laughed most of the way home.
What an adventure! ♥
Hi Debbie. I found your blog through FB... I also have a son w/CHARGE... his name is Luke. I went back and read your blog entries. Much of what you wrote hit home with me. My son is 6 now and began cycles of crying and pinching a year ago. 2010 was a tough year for Luke, but it did finally improve and we are now seeing our happy little guy again. I guess we can be thankful there are good times to help break up the bad times, right? I have a blog for Luke but have not kept up with it very well over the last couple of years. Anyway, thanks for sharing your personal joys and struggles of being the mom of a special needs child. Matthew is such a beautiful boy!
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